This project is a collaboration between academic researchers and voluntary sector organisations across the UK and Ireland. We know that family carers of people with profound and multiple intellectual disabilities, in addition to other carers, have experienced significant stress due to restrictions caused by the COVID-19 pandemic. This project seeks to capture those experiences with the aim of developing a programme to help reduce the impact of the pandemic.
We have been conducting focus group discussions (2021-2022) with our voluntary sector partners and family carers to understand what the pandemic has been like for them and determine what can be done to help. We aim to ensure that the voices of family carers are heard and are used to directly inform a programme to meet their identified needs.
Dr Mark Linden is a Reader in Health Sciences in Queen's University Belfast. Mark has worked in the area of disability research for over 18 years.
Dr Trisha Forbes in a Research Fellow in Queen’s University Belfast with around 15 years of research experience in a variety of fields, mainly mental health related.
Dr Eddie McCann is a Reader in Mental Health at City, University of London. His research centres around social inclusion, health inequalities, mental health and sexualities.
Nathan Hughes is Professor of Adolescent Health and Justice, and Head of the Department of Sociological Studies, at the University of Sheffield.
Professor Michael Brown is Professor of Nursing and Director of Graduate Studies in the School of Nursing and Midwifery at Queen’s University, Belfast.
Dr Maria Truesdale is a Senior Lecturer in Intellectual Disabilities at the Centre for Excellence in Developmental Disabilities at University of Glasgow.
Lynne’s research and clinical interests expand across children and older adults with learning disabilities and includes health and wellbeing, fathers and families’ disabilities research and relationships with people with intellectual disabilities.